Together for HUWE-1.

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Two young children, a girl and a boy, playing in a field of tall grass or wheat. The girl is leaning over and kissing the boy on the head, and the boy is smiling and wearing glasses.

Our work is guided by dedicated leaders, scientists, and advocates committed to advancing research and improving the lives of individuals with HUWE1-related disorders. Meet the people helping move our mission forward.

● THE FOUNDATION

Our Team
Get Involved

Our Team

  • A smiling man with short brown hair wearing a light blue button-down shirt, standing outdoors in front of green trees.

    PK Kearney

    Board Chair

  • A smiling man with curly dark hair, wearing a blue checkered blazer and an orange shirt, standing in front of a white wall.

    Charles Cameron

    Board Treasurer

  • A smiling woman with shoulder-length, wavy brown hair, wearing a black blazer and orange top, standing in front of a white wooden background.

    Shelly Cameron

    Board Secretary

  • A woman smiling outdoors with a background of green trees, wearing a blue and white striped shirt and earrings.

    Olivia Wheeler

    Director of Scientific Advancement

  • A woman with long brown hair smiling at the camera against a dark background.

    Arielle Krause

    Director at Large

  • A woman and a young boy smiling for a selfie outdoors, with part of a Maclaren stroller visible behind them.

    Ursula Greene

    Volunteer

Scientific Advisory Council

  • A woman with short brown hair, wearing glasses, smiling, dressed in a white medical coat with Johns Hopkins Medicine logo, and a name badge that reads 'K. Vahaba, MD, PHD, Pediatric Neurology'

    Kristin Baranano

    Chief Scientific Advisor

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    Scientific Advisor

    Coming 2027

  • Generic user profile icon with a gray background and a simplified outline of a person's head and shoulders.

    Scientific Advisor

    Coming 2027

  • Generic user profile avatar with a circular gray and beige silhouette of a person on a gray background.

    Scientific Advisor

    Coming 2027

Interested in becoming a Scientific Advisor?

Help shape the future of HUWE1 research by sharing your scientific expertise and collaborating with researchers, clinicians, and families to accelerate the development of effective treatments.

Reach Out!

  • Provides independent scientific and medical expertise to help guide the Foundation's research strategy and accelerate progress toward effective treatments for HUWE1-related disorders.

    • Advise on research priorities and scientific strategy

    • Review research proposals and funding opportunities

    • Foster collaborations with researchers and clinicians

    • Provide guidance on emerging scientific and clinical developments

    • Support the Foundation's mission to advance scientific discovery and improve outcomes for individuals with HUWE1-related disorders

    • Expertise in medicine, genetics, neuroscience, rare disease research, biotechnology, or a related field.

    • Demonstrated scientific or clinical leadership through research, practice, or industry experience.

    • Commitment to advancing research and improving outcomes for individuals with HUWE1-related disorders.

HUWE1 Foundation Transparency

The HUWE1 Foundation began in 2026. We are a 501(c)(3) charitable organization.

Our Charity ID number is 42-3690671

805 Dylan Drive, Jackson, Wyoming 83001

Conflict of Interest Policy

Our policy for identifying and managing potential conflicts of interest to ensure ethical and unbiased decision-making.

IRS Determination Letter

The official IRS document confirming the HUWE1 Foundation's tax-exempt 501(c)(3) charitable status.

Foundation Bylaws

The governing rules that define how the Foundation is structured, managed, and operated.

Tax Form 990

Our annual IRS filing, providing an overview of the Foundation's finances, governance, and activities.